Links & Press Info

Links & Press Info

Below are some helpful links with information about childhood cancer that helped me and my family along with some press releases.

Press Information:

4/11/2011     Children’s Neuroblastoma Cancer Foundation
12/14/2010    N&

Please remember that every child with cancer is different and for your own sanity do not compare your child to others with similar cancers…it is a waste of your energy.  That being said, the sites that I’ve given links for below are reliable and trusted sites – these are filled with useful information to help you find out as much as possible about your child’s disease and prepare you for everything from doctor’s visits to how to deal with life after the cancer is gone.

Here are some facts about Zach’s cancer – neuroblastoma.

  • Neuroblastoma is the most common cancer in infants with an incidence rate of almost double that of leukemia,yet most have never heard of it.
  • Neuroblastoma is predominantly a cancer of early childhood, with two thirds of the cases presenting in children younger than 5. The average age at diagnosis is 2 years old.
  • Neuroblastoma is a solid tumor cancer that originates in the nerve tissue of the neck, chest, abdomen or pelvis, but most commonly in the adrenal gland.
  • It is a very aggressive cancer with almost 70% of children having mestastatic disease (spread to other parts of the body) at diagnosis.
  • Neuroblastoma is the third most common cancer in children under 18.
  • Neuroblastoma has one of the lowest survival rates of all pediatric cancers.
  • The survival rates of high risk children is 30% at best.
  • There is no known cause or cure.

Facts about childhood cancer in general.

  • Childhood cancers are the #1 disease killer of children – more than asthma, cystic fibrosis, diabetes, and pediatric AIDS combined.
  • The cause of most childhood cancers are unknown and at present, cannot be prevented.
  • On average a treatment for childhood cancer diagnosis is two years, but many can last 5 years or more.
  • Although cure rates are steadily increasing, 35% of children will die.
  • In the U.S., about 46 children and adolescents are diagnosed with cancer every weekday.